A gnarly line infection has landed Joshua in the hospital. His surgeon wants to try to clear the line of the infection before we pull it and replace with a new one. But, in speaking with the Infectious Disease doctor today, there may be an alternative.
He doesn't want to run TPN through the infected line. So tomorrow night we're running regular IV fluids through a peripheral line. His thinking is why don't we try pulling the line all together and seeing just how well Joshua can do without TPN?
Why not?
Worst case scenario, we put the line back in, which we'll have to do anyway if this stubborn bug doesn't clear.
Our GI will have to call the shots, but I'm thinking it's worth a try?
Dear Friend-
ReplyDeleteMy name is Meghan Hall. My son, Avery was born last year with gastroschisis. I have since devoted my meager means and abilities to starting Avery's Angels, an NPO funding gastroschisis research, support and awareness.
We have grandparent and parent volunteers who spend their time scowering the internet looking for families to help. We came upon your information and wanted to reach out to you and let you know that we are here in any capacity that you might need us.
You are not alone. The CDC reports that one out of every 2000 babies in the US is born with gastroschisis. There are so many here with Avery’s Angels, and so many more out there to help.
We have read about your story and wanted to offer our support in anyway we can to you. We have access to medical information from UNC Hospitals which leads the east coast in research and repair for gastroschisis. There are medical physicians and specialists that we can contact on your behalf to get any questions answered for you and put you in contact with the best possible care practioners in your area if you still have any unanswered questions.
We also have a list of parent-to-parent support persons whom you can contact 24-7 via email, phone or possibly even face to face to help you in that way as well. There are prayer lists as well if you just need the support in that way or an occasional email, phone call check in. There are families in many different parts of the journey, newly home, living with the disease and affects for the past 3-21 years. We can link you up!
If you have always wanted to be part of an effort for the improvement of gastroschisis families and research we’d love to have you on board. There are many different ways to get involved and your commitment is only needed as much as you are ready to give.
You name it we are here to be your Angel. Please let us know how we may be of service to you, do not be bashful to be specific, we were formed to create to meet the most comprehensive library of support and information we can possibly provide. We look forward to being here in any capacity, meeting you and possibly getting you on board with our efforts.
You can learn more about us at our facebook page and causes Avery’s Angels NPO, follow us on Twitter at 4gastroschisis and until our websites gastroschisis.org and averysangels.org is fully up, you can read about us at angelaverysmommy.blogspot.com
Upon finding your information we have put you on our prayer list. We hope you're amazing son has a full recovery and are here to help in anyway possible.
Please do not hesitate to contact us with any questions, concerns or suggestions.
Love and blessings,
Meghan Hall
meghanhall@averysangels.org