Tuesday, February 15, 2011

Let Me Catch You Up to Speed

I know it's been so long since I've updated this blog. I hadn't had much internet access until just recently, but I should be more consistent now.

Joshua's doing really well. A month ago during a routine visit, his GI suggested we hold his tube feeds to see just how much he'll eat my mouth. For five days we kept track of everything and logged his caloric intake. He was averaging about 1000 cal/day. For his age that is great! Not to mention he still receives his TPN for 10 hours at night.

So now it's been a month and he's still doing OK. A little upper respiratory virus has slowed him down a bit, but for the most part his still maintaining his weight. His tummy is not nearly as bloated as it has been in the past. Not having to lug his backpack around has been quite the incentive, too. Any steps toward "normal" is so wonderful. I pray this cycle can continue. I continue to keep a watchful eye, not out of pessimism, but rather experience. Our roller coaster ride is far from over and we can't take anything for granted.

So little by little, inch by inch.

Marching on.


  1. it was a blessing teaching him in childrens church the other day. looking forward to him growing up and conquering the odds that were stacked up against him. he shows the strength that his parents possess.

  2. WOW! I'm a friend of Amy's, and wanted to say congrats and God bless!