We had Joshua's follow up visit with GI yesterday. He's at a loss at this point. We have pretty much run out of options, other than just continue on as we are. There's a chance Joshua could have another STEP procedure, where the dilated portion of bowel is tapered down. This process makes the width of the bowel smaller and actually lengthens what's there. He's had 3 STEP procedures so far.
BUT will it help?
That's the million dollar question. We've got all the Texas pediatric surgical gurus collaborating. Our GI also has a call into Children's Hospital of Pittsburgh. It's very likely that we'll be heading that way soon. They've got such a well experienced team that is just exceptional at intestinal rehabilitation.
Maybe there's something else that we can be trying? We're willing to go to the ends of to find out. Just praying we don't have to go up there during the winter months! Hate the cold!
I'm a little uncertain about how I feel. Having some mixed emotions about the whole thing. The thought of them telling me there are no more tricks up the sleeve, is nagging me. But, we'll cross that road when we get there. With the Lord's guidance all the right decisions will be made. Until then, we'll continue to do what we've always done. Keep Joshua as healthy and strong as we can.
That means we watch him as close as we can, ready to catch a bout of dehydration or onset of a line infection at the first sign. Please keep him in prayer. His life is such a sensitive balance. I've seen him go from a bouncing, laughing, full of life, to a dehydrated, nauseated, lethargic little boy in the matter of 12 hours.
I get asked all the time, "How's Joshua?" I've often found myself saying "He's doing great today." or "He's having a hard time, today." Many times it's a different answer daily. One day at a time.
"Take therefore no thought for the morrow: for the morrow shall take thought for the things of itself."